Cele 4 stadii ale Endometriozei – de ce (aproape) nimeni nu vorbeste si despre nodulii endometriozici?

RO: Padma Lakshmi, Susan Sarandon, Halsey, Whoopi Goldberg, Dolly Parton sunt doar cateva dintre celebritatile care s-au confruntat sau se confrunta cu endometrioza. De-a lungul timpului, am citit multe dintre marturisirile lor privind aceasta afectiune. Dupa ce m-am confruntat eu insami cu 2 operatii majore, nu m-am putut abtine sa nu ma intreb de ce nimeni, mai ales din strainatate, nu vorbeste despre cele 4 stadii ale endometriozei si toate formele ei, inclusiv nodulii endometriozici?!

Sa nu ma intelegeti gresit! Este bine ca oamenii incep sa vorbeasca despre asta. E bine ca incepe sa se faca ceva, dar haideti sa privim adevarul in fata.

ENDOMETRIOZA NU ESTE DOAR DESPRE CHISTURI OVARIENE, DURERE IN TIMPUL MENSTRUATIEI SI INFERTILITATE!

Nu! Mai jos veti vedea care sunt si ce implica cele 4 stadii ale endometriozei (cu o bibliografie bine documentata la final, bineinteles). Din punctul meu de vedere, una dintre cele mai grave forme de endometrioza este cea rectovaginala care implica noduli care se formeaza pe colon. Daca sunteti sub supravegherea unui medic cu experienta in endometrioza (zice el sau altii), asigurati-va ca doctorul vostru stie asta!

Asadar, iata mai jos care sunt cele 4 stadii ale endometriozei.

STADIUL I

Stadiul I inseamna leziuni minime sau inflamatie pe sau in jurul organelor din regiunea pelvina.

STADIUL II

Leziunile, inflamatiile sau zonele cu probleme sunt un pic mai pronuntate decat la stadiul I, dar “dauna” la nivelul organelor nu este atat de mare. Nu sunt foarte multe aderente sau leziuni endometriozice.

STADIUL III

Leziunile endometriozice sunt mai extinse. Tesutul incepe sa infiltreze organele din regiunea pelvina, inclusiv din cavitatea abdominala. Pot sa apara aderente endometriozice importante.

STADIUL IV

Boala infiltreaza mai multe zone in regiunea pelvina, ovare si alte organe din regiunea extra pelvina. Nodulii sau aderentele duc la distorsionarea sau schimbarea anatomiei pelvine si la alte complicatii mai grave.

Experienta mea

Cand am ajuns la cel de-al doilea medic care m-a operat (cred ca al 8-lea in total in timpul celor 15 ani de “cautari”), in decembrie 2015, am fost diagnosticata direct cu stadiul IV din cauza unui nodul pe colon de 4.5 cm. Endometrioza pe intestine, rect, vagin, vezica urinara nu este ceva foarte rar intalnit, dar eu habar nu aveam de asta.

Fetelor, ar trebui sa va intrebati doctorii despre aceste stadii, despre noduli si despre complicatii. Nu va sfiiti sa faceti asta. Cand aveti un stadiu mai avansat, doctorul vostru principal ar trebui sa formeze o echipa de medici de diverse specializari pentru ca operatia ar putea necesita si o rezectie de intestin, ca in cazul meu. Nu a fost nici usor, nici foarte, foarte greu, dar e important sa aveti un diagnostic corect si un tratament pe masura. Asa am reusit sa tin sub control o endometrioza agresiva plus, dupa operatie (foarte importanta cand stadiul este avansat), suplimente, dieta, stretching etc,. chiar si atunci cand tratamentul cu anticonceptionale sau Diphereline nu au mers in cazul meu.

Marina Rasnoveanu

Daca vreti sa cititi si alte materiale despre endometrioza si un stil de viata sanatos, urmariti-mi blogul si pe Facebook sau Instagram.

Mai multe articole despre Endometrioza si experienta mea cu aceasta afectiune, poti gasi aici.

EN: The four stages of Endometriosis – Why no one is talking about endometriosic nodules, too?

Padma Lakshmi, Susan Sarandon, Halsey, Whoopi Goldberg, Dolly Parton are only some of the celebrities struggling with endometriosis. Over the years I have read many of their confessions regarding this disease and after I went through two major surgeries for severe endometriosis I couldn’t help myself from wondering “Why on hell no one abroad is talking about the four stages of endometriosis and the forms it can take, nodules included?!”

Don’t get me wrong! It’s good people are starting to talk! To do something! To organize events, but let’s face it! Let’s say it clear!

ENDOMETRIOSIS IS NOT ONLY ABOUT SOME OVARIAN CYSTS, PAIN DURING MENSTRUATION AND INFERTILITY!!!!

No! You will see below the four stages of endometriosis (with bibliography and resources included, of course) and, in my opinion, one of the most severe forms of endometriosis: the rectovaginal endometriosic nodule that can form on the colon, in the region between rectum and vagina etc.

If you are under the care of  an endometriosis specialist, your doctor should know that!

Therefore, here are the characteristics of the four stages of endometriosis:

STAGE  I

Stage I means minimal lesions or inflammation on or around organs in the pelvic area.

STAGE II

The lesions, the inflammations or the endometriosic areas are a little more pronounced than at the stage I, but the organs’ damage is still fairly restricted. There are not too many adhesions or endometriosis injuries.

 STAGE III

The endometriosic lesions are more extensive. The tissue begins to infiltrate organs in the pelvic region, including the abdominal wall. There may be important endometriosic adhesions or scars.

STAGE IV

The disease actively infiltrates more areas in the pelvic areas, ovaries and other organs from the extra pelvic region. The nodules or adhesions lead to distortions in patient anatomy and other more serious complications.

My experience

When I reached the second doctor who operated me, I was diagnosed with stage IV due to my 4.5 cm recto vaginal nodule. Endometriosis on the intestine, colon, rectum, vagina, bladder is not something uncommon.

Yet, almost no one is talking about it. At least no one from all those celebrities and very few on the groups I follow on Facebook.

Girls, you should ask your doctors about those stages, about nodules and these complications. When you have such thing, the doctors should form a team with doctors of different specialties because the surgery could imply a bowel resection too. I have this: 10 cm of my colon cut. It was neither easy, nor difficult, but it’s important I had a fair diagnosis and a fair treatment. This is how I managed well my endometriosis plus with supplements, diet, yoga etc, even if the birth control pills and those hormonal plans didn’t work for me.

Do you want to read more articles about endometriosis and tips&tricks about a healthy lifestyle, follow my blog on Facebook and Instagram too.

Bibliografie:

www.nzendo.org.nz/about-endometriosis#stages-or-grades-of-endometriosis

https://endometriosisnews.com/2017/09/26/the-4-stages-of-endometriosis/?utm_source=END+E-mail+List&utm_campaign=419e6b11ce-RSS_THURSDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_5a9732e593-419e6b11ce-72319117

https://www.researchgate.net/profile/Peter_Oppelt/publication/232811196_Preoperative_planning_of_surgery_for_deeply_infiltrating_endometriosis_using_the_ENZIAN_classification/links/0fcfd509bf3871af01000000/Preoperative-planning-of-surgery-for-deeply-infiltrating-endometriosis-using-the-ENZIAN-classification.pdf

https://www.ncbi.nlm.nih.gov/pubmed/?term=nodule+endometriosis

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